Wednesday, September 9

So grateful

I wanted to write here for anyone who isn't on social media that yesterday Jacob had a stable brain scan.

The doctors said that the swelling had significantly diminished and that there was no visible tumor growth in his brain. It was such a relief to hear those words and our hearts filled with gratitude to our merciful Heavenly Father for such a wonderful blessing.

Below is a picture of Jacob's brain at his previous scan in July and then from the MRI yesterday.
The white enhancements in July were due to swelling that was pushing the mid-line of his brain to the left and inhibiting his ability to think clearly and communicate. As you can see, yesterday the mid-line is almost back to normal and the bright white enhancement has all but diminished.

There is never any way with cancer to know what is actually working, but the combination of IMRT radiation, wearing the Optune scalp device, Avastin infusions, his low carb diet, and continuing on the chemotherapy Temodar seems to be working.

I wish I could adequately explain the gratitude I feel.

I wanted to write about this previously, but in July we were both very nervous about his scan. Jake had been having difficulty communicating and just seemed off before we even went in and we didn't feel that confident that things would be ok. Then after the nurse asked us some pointed questions, and we waited in the room for over an hour, we both started to expect the worst. It should have been a despairing moment, planning to hear them say that all was over and that we'd need to call hospice, but the despair did not come. Instead, my mind and heart were filled with gratitude for the time I had been given with Jacob by my side and only warm memories of experiences we'd had together and with our children flooded my mind. We spoke of how we would want to live out his last days and the things that were most important and although tears filled our eyes at the prospect, our hearts were at peace. We were ready.

But then the worst did not come. The doctors came in concerned, but explained that with so much swelling they could not tell what was going on in his brain and that he would start Avastin infusions to help clear up the edema and give a better picture in two months.

We left that appointment stunned that there were still days ahead and anxious to get infusion treatments going so that we could really see what was going on.

And then yesterday what we saw was so encouraging and hoped for that we could not but feel overwhelming gratitude.

Just a week ago I wept after reading the account in 3 Nephi 17: 6-10 of when Jesus blessed and healed all of those who were afflicted in any manner during his visit to the American continent. I could truly understand the description in verse 10, that "...they did all, both they who had been healed and they who were whole, bow down at his feet, and did worship him; and as many as could come for the multitude did kiss his feet, insomuch that they did bathe his feet with their tears."

Although Jacob is not healed, I have seen him be restored to health, recover, recuperate, and respond phenomenally well through so many obstacles and set backs that I, like those in the Book of Mormon, feel such gratitude to the Savior for doing for Jacob what I cannot do. They were ALL- both they who were healed (the afflicted) and they who were whole (their loved ones) so grateful to Him that they did bow down at his feet and worship him, and as many as could come did kiss his feet and bathe his feet with their tears.

If Jesus were here, I would have been one of those worshiping at His feet, bathing His feet with my tears. I am grateful for the blessing of feeling gratitude to the Savior in such a personal, profound way.

At the same time, the doctors told us yesterday that we were their only good news of the day. They had been seeing brain tumor clinic patients from 1:00-5:00 pm and the reality of that grief and heartache made me feel so much empathy for the patients and their family members who left the clinic yesterday with despair and heavy hearts. As much as I was grateful and rejoicing for our good news, my heart was also pained for those who received bad news. Please remember them and their families in your prayers. They, especially, need the companionship of the Holy Ghost and the comfort only the Savior can give. There are so many in the world, and close around us who are grieving in our moments of happiness.

Finally, I wanted to express gratitude for Jacob's medical team of doctors, nurses, and practitioners. We have developed a closeness with his neurosurgeon and neurooncologist and their staff through these many months and are grateful for their efforts that have extended Jacob's life. Every time we go to clinic we can't but help feel compassion for them, fellow human beings, who have to deliver such heavy news to their patients and their families. I know it is their job and they have coping strategies, but it is still a very hard thing to do and we are grateful beyond words for their desire to work in such a difficult field.

17 comments:

kristi said...

What a wonderful, sweet, tender post. Thanks Jord, for always putting your personal feelings to print. It makes me realize how each day is a gift and to remember to be more grateful. I'm so happy for you, Jake and your family that you had this good news, and I continue to pray that he remains stable. Love you guys!

Unknown said...

woops- sorry- that comment was from me. I'm at work and didn't realize the girl who works in the morning was signed into google...

Tristen said...

This is such amazing news! Life is such a blessing every single day, so so so happy for great news and so many more happy days on this beautiful miraculous earth!!

mrs. timberlake said...

Hi Jordan! Is a blog not social media? I'm so out of it. :) I mean MySpace is still where all the cool kids are, right?
I am a big lurk-er, but not a big comment-er. Loved this last post. So happy for you.
Good to see you last month and chat for a minute with Cerise.
Amy

Anonymous said...

What a beautiful post, Jordan. Thank you for sharing. We are so grateful for this good news. What a blessing and miracle. We love you, Jake and the kids dearly. :)

John Robertson said...

Thank you Jordan. Words fall so short of expressing how grateful I am for the person you are and for how tender you have been and are with Jacob. Our prayers for you and Jacob and family have been unrelenting.

John Robertson said...

Thank you Jordan. Words fall so short of expressing how grateful I am for the person you are and for how tender you have been and are with Jacob. Our prayers for you and Jacob and family have been unrelenting.

John Robertson said...

Thank you Jordan. Words fall so short of expressing how grateful I am for the person you are and for how tender you have been and are with Jacob. Our prayers for you and Jacob and family have been unrelenting.

Kylee said...

I'm so glad that everything looks good! I never really thought about how hard it would be to work in that field and have to deliver so much bad news. It's very sweet of you to recognize them and be grateful for what they do. I love reading your posts and I always feel uplifted by your words.

James said...

This post is wonderful on so many levels. The gratitude for the doctors, the sympathy/empathy of others' suffering, the soulful worship of Christ and deep gratitude for the miracles we have seen. I am so inspired and touched by your words and profoundly grateful for the outcome of the most recent scan & treatments. The side by side picture is truly astonishing.

Derek said...

Beautiful.

Chris and Jessie said...

Wow so amazing! We are so happy for your sweet family and this wonderful news! Thanks so much for sharing!!

M. Du Bois said...

Hallelujah! So happy for you all

Crystal said...

Jordan I am so happy for you and I don't feel like I can adequately express it.

Vonnie said...

Thanks, Jord, for the sweet and tender post. I love you, and am so proud of your spiritual and emotional maturity, for your spiritual strength, and for your kindness to others. You and Jake are examples to all of us as to how to deal with what life gives you. Thanks for writing, and thanks for your goodness.

vfr

Unknown said...

What a beautiful post, and amazing news. I am so happy for you and Jake and your beautiful children! Your strength (both you and Jake's) has been such an inspiration.

Lyn said...

Wonderful news!!