The plan from here is for him to receive IMRT radiation to his most recent tumor bed. This radiation will be given in a daily dose, Monday through Friday, for the next 6 weeks. He had the planning MRI last Thursday and will start treatment tomorrow.
In addition, Jake will take a daily chemotherapy pill for the full course of the radiation. 42 pills from start to finish. He took these pills last year, but with an alternative radiation therapy that was only a one time treatment.
After the 6 weeks of radiation he will have a few weeks off and then head in for the post-radiation MRI. Jake also stopped wearing scalpie, the Optune scalp device, after his scan on the 28th so that he could have surgery and to give the incision time to heal. Patients do not wear it during standard radiation therapy, so he won't put it on again until after his radiation treatments are over.
Jake made the decision to transfer onto long term disability after his scan showing a new spot in February. Thankfully, he had several weeks to transition off of all of his cases and hand everything over in a way that he wanted to. Looking back now, it is good that he made that decision with work as the new tumor, surgery, and these next treatments have and will be consuming.
Emotionally we have been riding a roller coaster. Shocked by the new tumor, relieved he could have surgery the next day, grateful the surgery went well, exhausted from the hospital stay, overwhelmed by the paperwork and insurance issues to deal with, sorrowing for the progression of his disease, encouraged by the support of family and friends, saddened in the face of our still uncertain future.
We are trying to take this one day at a time. But sometimes, just one day is a lot.
I will write more specifically later, but the one bright spot over these last weeks has been the goodness of people to us. We have been so blessed by the service of others and would not have made it without our family members literally coming to the rescue.
We are grateful to know that we are not facing this experience alone.
I will write more specifically later, but the one bright spot over these last weeks has been the goodness of people to us. We have been so blessed by the service of others and would not have made it without our family members literally coming to the rescue.
We are grateful to know that we are not facing this experience alone.
9 comments:
Hang in there. Know that you are loved.
You are loved and many prayers are given on your behalf. Please feel our love for your family. Connie
Love you Jordan. We are praying for you, Jacob and your sweet kids.
Praying for precision and effectiveness of the radiation and that the Lord will buoy you up through these next 6 weeks. Love you.
Thanks for the update Jord. I'm always thinking of and praying for you guys and it's good to hear how things are going. I hope to be able to see you guys this summer. Love you!
You're on a hard road no doubt about that...I'm sorry jord! You are always in my prayers. Aaron said jake did great at the firm lunch. Love you guys!
You are loved dearly, and we are so glad we could be there shortly after the surgery. Jake is tough, and you are, too, and we love you both and the kids, as well. vfr
So glad I got to see you this week! You are continuously in my thoughts and prayers. I pray that the radiation will be a success and that you will be able to have a fun summer together despite Jake's treatments. Love you!
Sending lots of love to you guys! I am so impressed by your family. I know these are hard times, but you are handling it with grace, strength and faith in the Lord.
There is so much love and concern for you, Jake and the kids. Thanks to so many for their tender mercies and for their love. We love you.
vfr
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